Lymphangiomatosis is the formation of benign tumours of the lymphatic system which can grow anywhere in the body and can cause severe complications.

The condition is so rare that there is not a percentage of how many people across the world are affected by it.

Mostly found in infants, the condition is not hereditary or more common to either genders or any specific ethnic background.

Due to its rarity, it is difficult for medical professionals to diagnose the disease or prescribe medication to treat it. The only way doctors can be sure is by conducting MRI or CT scans, while sometimes a biopsy is necessary. There is not yet any cure to the condition, treatment plans are made on an individual basis aimed at managing the patient’s symptoms.

In the early stages of the disease, people are usually asymptomatic because the tumours grow at the same rate as their body.  However, the lymphatic tumours are capable of massive expansion, some of which may be life-threatening. Surgery may help to remove the tumours, but they may be difficult to completely remove if they have spread.

The symptoms of Lymphangiomatosis can differ in each individual case and are often categorised by the part of the body affected. The most common areas of Lyphangiotmatosis are Cardiothoracic, Abdominal and Skeletal.

For more information about Lymphangiomatosis: its causes, its symptoms and how the condition is treated please visit our friends at the Lymphangiomatosis and Gorham’s Disease Alliance