Welcome to The Rudy Study

Alfie’s Trust, as part of the Lymphangiomatosis and Gorham’s Disease Alliance – Europe, is pleased to be part of The Rudy Study. This is a UK based study with an interest in understanding more about all aspects of rare diseases of the bones, joints and/or blood vessels. The study is open to patients with Gorham’sRead More

Rare Disease Day 2015 – Did you know?

The 28th of February marks Rare Disease Day 2015, which aims to increase awareness of diseases like Alfie’s. Did you know: • 1 in 17 people will be affected by a rare disease at some point in their life. This amounts to approximately 3.5 million people in the UK. • 75% of rare diseases affectRead More

Team Alfie joins Aberdeen and Deeside Kiltwalk

  Alfie’s Trust is excited to be entering a team for the Aberdeen and Deeside Kiltwalk in June 2015. There are two walks to choose from, an 8-mile route or a 26-mile marathon. Both are along the Deeside Way and end with a celebration at Potarch. 26-milers start at the Duthie Park, 8-mile walkers startRead More

Come and Join us for RunBalmoral 2013

RunBalmoral here we come…….. With only days left until the event our fingers crossed for good weather on the day for all the runners and spectators. It is going to be a fantastic day for all those that attend with promises of it being even bigger and better than last year. Please come in andRead More

Balmoral Run 2013 Update

Registration is now closed for the 5k Balmoral Run. We have beat our challenge of 100 runners and have 130 people taking part in the 5k race. Overall there will be 200 adults/children running for Alfie’s Trust. Anyone wishing to make a donation or sponsor us for this event can do so by clicking onRead More

Happy New Year!

Happy New year to you all from Alfie’s Trust. Thank you to everyone that has helped and supported us over the last year. We have another busy year ahead of us with various events taking place. If you would like to help out at an event, or hold your own fundraiser in aid of Alfie’sRead More

Latest Events- Bag Packing and Balmoral Run

Bag Packing @ M&S Our next event is Bag Packing AT M&S, Westhill, on Sunday 23rd December 2012, 12noon – 4pm. If anyone in the area is free and would like to give us a hand on the day, please get in touch. Many hands make light work. Balmoral Run 2013 Once again Alfie’s TrustRead More

Culter Creative Kids – Art Exhibition

On Friday 29th June 2013, Culter Creative Kids will be putting on an Exhibition of their work. Family members are invited along to view their pieces and will be given the chance to purchase some of the artwork. A percentage of the proceeds will kindly be donated to Alfie’s Trust. We are looking forward toRead More

Sunny Day for Culter Gala

Alfie’s Trust had a great day at Culter Gala. The theme this year was the Diamond Jubilee so our stall was bedecked in red white and blue streamers, union jacks and balloons. Our efforts paid off as our stall won 3rd prize for being the best decorated. The sun shone and the Gala was wellRead More

Robert Burns Booklet Sale

Class 2X3 of Banchory Academy put together an information book about the life of Robert Burns and then sold the booklet to friends and family. The proceeds went to two charities, Alfie’s Trust and Home Start – two very worthy causes. Thank you to Brodie Mitchell and the Class of 2X3 for helping to raiseRead More

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Alfie Milne Lymphangiomatosis Trust is a registered charity in Scotland (SC043165)