We would like to thank Mrs Barbara Church and her family and friends for raising £400 to go towards research into Lymphangiomatosis. Mrs Church’s great niece Hollie, who is only 5 years of age from Newcastle-upon-Tyne, was diagnosed with Lymphangiomatosis just this year. Hollie has over 150 bone lesions throughout her body. Despite the manyRead More

Thank you to everyone that made it to our Tea and Crafts Afternoon on Sunday at the Mill Club in Peterculter. It was lovely to see some new faces supporting our event but equally, it was great to see those familiar faces that have supported us from the start. After eating the delicious home bakesRead More

Set within the beautiful Royal Deeside the Paul Lawrie Golf Centre hosted Alfie’s Trust Charity Golf Event for the second year. With nineteen teams registered to take part in a ‘Texas Scramble’ the challenge was on to see which team name would get to be engraved on the Challenge Shield this year. An incredible £1640Read More

Calling all Golfers…….. On Saturday 6th September 2014, Alfie’s Trust will hold its second Charity Golf Event. The Paul Lawrie Golf Centre, Aberdeen, has kindly offered to host the event again. Teams of 4 are invited to take part in a ‘Texas Scramble’ on the nine hole course. Entry fee is £15 per adult andRead More

We are very thankful to Professor Ian Murray, Head of RGU’s School of Nursing and Midwifery at Robert Gordon’s University for helping us to mark Rare Disease Day as part of an annual worldwide awareness raising campaign.

Places still available if you run for Alfie…. Alfie’s Trust still has places available for the 5k and 10k run on the beautiful Estate grounds of Balmoral. If you would like to run for Alfie we are asking for a minimum of £50 sponsorship. Alfie’s Trust still has allocated places left if you would likeRead More

Thank you so much for supporting us. Your kindness means a lot to us as a family and to children all over the world who are living with the challenges of these two very rare diseases, Lymphangiomatosis and Gorham’s Disease. With your help we can move forward to improve the care of patients by promotingRead More

On the 21st of September, Alfie’s Trust organised their first Charity Golf Event at the Paul Lawrie Golf Centre, Banchory Devenick, Aberdeen. It was a perfect day for Golf with the sun shining. 16 teams of 4, including some keen junior golfers took part. The winning team from Aker Solutions were presented with the Alfie’sRead More

On Saturday 26th October we will be holding our annual Tea and Coffee Afternoon. The venue has changed this year and will be at the Culter Parish Church Hall between 2 – 4 pm. As well as your beverages and delicious home bakes there will be a Chocolate Tombola, Quiz, Raffle and Craft Stall. ThisRead More

Please come and join our Charity Golf Event on Saturday, 21st September 2013. We are looking for teams of 4 to play a ‘Texas Scramble’ on the nine hole course at the Paul Lawrie Golf Centre, South Deeside Road, Aberdeen. Adults and children are welcome to take part with a rolling start from 10.00 am.Read More