Staff at ThinkPR in Aberdeen have worked tirelessly over the last year to reach their target of £10,000 for Alfie’s Trust to mark their firm’s 10th year in business. Their team took part in quiz nights, mud runs, man auctions and food sales to raise funds. We at Alfie’s Trust can’t thank them enough forRead More
Thank you to Mick Ferguson for nominating Alfie’s Trust to received a donation from EnQuest. Through their 2014 Greenie Chart campaign, the team on the Thistle Alfa Platform raised £2,837.50. Thanks, guys!
Thank you to Kenny Walker for running the London Marathon in aid of Alfie’s Trust. Well done for completing the brutal 26.2 miles in 4hrs 16mins and raising an amazing £1,317.22. A portion of this sponsorship comes from Banchory Academy, so a big thank you to them for their help and support.
Alfie’s Trust has been very fortunate to receive two further donations. The first from Bucksburn & District Pipe Band who donated £300 from money that was raised through the 4th annual concert at the Music Hall. (I believe there has since been a 5th concert) The second is to Culter School for donating £400. ThanksRead More
Alfie’s Trust would like to congratulate Beata Filipinyi who completed the Brighton Marathon in 4hrs 44 mins. Beata took on the challenge of the gruelling 26.2 miles to raise funds to help all those suffering from Lymphangiomatosis after her best friend’s son Bo, from the Netherlands, was diagnosed with this awful disease. Thank you toRead More
Help us raise funds for FREE when you shop online easyfundraising.org.uk is a brilliant way to raise money for Alfie’s Trust Shop online with over 2,700 retailers and they’ll give a donation every time you buy something, at no extra cost. 1. Start at easyfundraising.org.uk Let’s say you want to buy a book from Amazon.Read More
GOSH has a Rare Dermatology Diseases Resource – An HTA tissue bank was set up in 2013 to help investigate very rare disorders where the cause is not known. Some genes for lymphatic conditions are known, however most are not yet known. Finding the root cause of Lymphangiomatosis would be very important step forward inRead More
Beata has been training hard over the last year to complete her first ever Marathon. On the 12th of April, Beata will take on the challenge of the Brighton Marathon raising funds for Alfie’s Trust. About a year ago her best friend’s son Bo from the Netherlands, aged 20 months old at the time, wasRead More
The Centre for research into Rare Disease in Children will be the world’s first centre dedicated to paediatric research into rare diseases. It is a partnership between Great Ormond Street Hospital, University College London and Great Ormond Street Hospital’s Children’s Charity. The building will sit adjacent to the hospital and UCL Institute of Child Health.Read More
The 28th of February marks Rare Disease Day 2015, which aims to increase awareness of diseases like Alfie’s. Did you know: • 1 in 17 people will be affected by a rare disease at some point in their life. This amounts to approximately 3.5 million people in the UK. • 75% of rare diseases affectRead More