Clinical Research at GOSH

In February this year, Alfie’s Trust funded a 6-week Fellowship to allow Maria Gnarra to join the Dermatology Department at Great Ormond Street Hospital to work on clinical projects on paediatric vascular and lymphatic anomalies. Maria has kindly released this statement. I am an MD, PhD conducting basic and translational research on paediatric vascular anomaliesRead More

RunBalmoral 2016 – only 9 days to go

Alfie’s Trust will be at RunBalmoral on the 23rd and 24th of April, cheering on our runners, young and not so young, taking part in the various races throughout the weekend. As Alfie’s Trust is not one of the nominated charities this year, instead of manning our stall in the charity tent we will beRead More

Cults Academy pupils help to raise awareness of Alfie’s Trust

A group of pupils from Cults Academy took part in the ‘Catch Challenge’ at the end of last year. Amy Sinclair and friends chose Alfie’s Trust to do their presentation on. We want to congratulate them on getting all the way to the final. Unfortunately, they didn’t win but they did a fantastic job ofRead More

Get your running shoes on – RunBalmoral only 87 days away

With only 87 days until Runbalmoral 2016, we urge you to sign up now so not to be disappointed (www.runbalmoral.com to register). Places are going fast. Join Team Alfie and help to raise money to improve the lives of those suffering from Lymphangiomatosis and Gorham’s Disease.

Altus Avengers take on Tough Mudder

Back in June, a team of 8 work mates from Altus Intervention, Portlethen, took part in the Tough Mudder challenge at Drumlanrig Castle. For those of you that don’t know Tough Mudder is a team oriented 12 Mile (20km) obstacle course designed to test physical strength & mental grit. Tough Mudder puts camaraderie over finisherRead More

Alfie’s Trust meets LGDA in Florida

Look who we met in Florida? On our family trip to Florida, courtesy of Starlight Children’s Charity, we meet up with Jack Kelly, the President of the Lymphangiomatosis and Gorham’s Disease Alliance, USA. The last time we saw Jack was at the Patient and Family Conference, partly funded by Alfie’s Trust, in Dallas in JuneRead More

Trip to Great Ormond Street Hospital

Thank you to everyone that asks how Alfie is doing. Here’s a little update: We have just returned from a successful trip to Great Ormond Street. Our aim is to get Alfie ready for surgery next year. He has been working hard with daily physio sessions to improve his strength throughout his core, back, andRead More

Be part of Team Alfie at RunBalmoral 2016

We’d like to say a big THANK YOU for running and/or supporting Alfie’s Trust in the past and we’re hoping you had so much fun that you’d like to do it all over again at Run Balmoral on the 23rd and 24th of April 2016! It’s quick and easy to sign up for the event.Read More

Yeeha. Oh what a night!

Yeeha! What a night. Thank you to Denise and Stewart Gardiner for organising the Wild Westhill Night. Over 100 cowboys and cowgirls came to the shindig, decked out in their Stetson and cowboy boots, and had a hog killin’ time. Thanks to everyone that supported the event, the line dancers and the fantastic band, FifthRead More

Happy 60th Birthday Stephen Thompson

Thank you to friends and family of Stephen Thompson who were kindly asked to donate to Alfie’s Trust rather than giving Stephen a gift at his 60th Birthday Bash. Thanks to Stephen and all the party goers for raising a fantastic £1,080 to help our cause.

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Alfie Milne Lymphangiomatosis Trust is a registered charity in Scotland (SC043165)