Alfie’s Trust is a non-profit organisation to give hope and find help to all who are affected by this disease. We work with volunteers only and on out team we have a board of Trustees that directs the efforts of Alfie’s Trust.
Founder of Alfie Milne Lymphangiomatosis Trust and Trustee
Tracy’s youngest son, Alfie, was diagnosed with Lymphangiomatosis in 2008. That was when her journey to find help for her son began. She learned of the work of the LGDA and affiliated Alfie’s Trust with them to support its work. Now a board member of the LGDA and chair on the board of the LGDA -Europe, she is also involved with patient support for the European community. Prior to having her family, Tracy worked in Administration but is now a full-time mum to Lewis and Alfie, and wife to Mark.
Mark is the father of Alfie. Together with his wife Tracy help to set up and help to run Alfie’s Trust. Mark is an admin, together with a member of the Lymphangiomatosis and Gorham’s Disease Alliance, on the two Facebook groups which support patients, family members and others affected by these rare diseases. Mark works in Construction as a self-employed Joiner.
Treasurer and Trustee
Myra is Alfie and Lewis’s Gran and took up the challenge of keeping all the financial records for Alfie’s Trust. Her background is in book-keeping although now retired. Each year the accounts are checked over by the AVCO office in Aberdeen and forwarded to Office of the Scottish Charity Regulator.
Secretary and Trustee
Ashleigh became a friend of the Milne family after moving into their neighbourhood. Having two sons the same age as the Milne boys meant that the families spent a great deal of time together. Through this relationship, Ashleigh saw Alfie’s story develop from the journey to diagnosis, through tests and treatment, complications and setbacks. Watching the challenges unfold for Alfie and his family, it was clear that the lack of clear information, support and hope for the future was by turns frustrating and devastating.
With this in mind, Ashleigh fully supported the family’s aim to improve the situation for all lymphangiomatosis patients and their families. She helped to establish Alfie’s Trust in 2012 and has since been a committed volunteer at charity events and on the Board of Trustees. In addition to her role with Alfie’s Trust, Ashleigh has had a 20+ year career in the oil and gas industry.
Lynne was introduced to the Milne family by Ashleigh and has enthusiastically volunteered for Alfie’s Trust over the years. She took part in the Kiltwalk and various fundraising events before officially joining the team in 2015. Lynne has worked as an IT consultant for almost 25 years in the Oil & Gas Industry.
Web Designer & Technical Consultant
Tracy has played a role in the trust since the early days. Her primary role is to develop and maintain the website. In addition to this, she is also on hand to provide advice on all things technical and volunteers her services to our fundraising events.
Her primary job is working in a private school as an Additional Support Needs (ASN) Practitioner working with children on the autistic spectrum. Her previous charity work included coaching football and club secretary to Culter Youth FC. In her spare time, she enjoys coding, web design cooking, reading, football and designs and maintains her own blog.
Stewart helps out with the fundraising for Alfie’s Trust. His association with the charity goes back a few years and with his willingness to ‘throw himself’ into a project he ‘volunteered’ to help Alfie’s Trust achieve its financial targets. You’ll find Stewart at many events organised for the charity although you might not recognise him at first glance.
He also attends regular meetings to keep up to date with the charity and lends support where appropriate.
Stewart works in business development and has lived in Aberdeen for over 20 years.