Websites

Lymphangiomatosis and Gorham’s Disease Alliance, US

Lymphangiomatosis and Gorham’s Disease Alliance – Europe

Lymphatic Malformations Institute

Contact a family

Visiting GOSH for the first time

Rare Disease UK

Eurordis

Reading materials

The Essential Guide to Travelling with a Medical Condition

When a sibling is seriously ill

Caring for a seriously ill child

Dealing with an Incurable Disease

Life-threatening illness: what to tell family and friends

9 things never to say to friends battling illness