Patient matching programme

Lymphangiomatosis and Gorham’s Disease are extremely rare conditions and a strong support system is vital for patients and their families coping with the diagnosis and living with the conditions.

Working with the LGDA we can assist patients and families in finding this support by facilitating introductions to others.

Our patient support team looks for patients who are of similar age or are at similar stages of their treatment plans and match them together to share their experiences and realise they aren’t alone in their fight.

Because the conditions are so rare, an exact match is unlikely, but we do try to find the closest match for each situation.

If you are interested in participating in the programme, please complete and submit the Patient Matching Registration form and someone from our support team will get in touch.

Channels Newsletter

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