Aims

  • Raise awareness of the needs of people affected by Lymphangiomatosis and related conditions, promoting supportive services that could benefit such people.
  • Support research into causes and treatment of Lymphangiomatosis and related conditions (like Gorham’s Disease) to advance knowledge about the condition.

Objectives

  • Provide literature on Lymphangiomatosis and related conditions for public distribution to all relevant locations.
  • Assist and raise awareness of supportive services benefitting sufferers by:
    • Working closely with the LGDA to further establish patient support.
    • Referring individuals who make contact with Alfie’s Trust to such existing support.
  • Support research into causes and treatment of Lymphangiomatosis and related conditions by providing grants to medical research bodies.