The Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) were again selected to participate in the UPenn Orphan Disease Center (ODC) Million Dollar Bike Rid for research.

The annual Upenn Medicine Orphan Disease Center’s Million Dollar Bike Ride was another incredible success this year in raising money for disease research.  Along with a matching fund from Upenn, the combined efforts of the LGDA  and it’s partners LMI raised a total of $100,540.  The money will be used for specific research into Gorham-Stout disease and lymphangiomatosis.

The LGDA – Europe’s national charities, Alfie’s Trust, LGDA Netherlands, and LGDA Belgium are pleased to support this research programme for a 2nd year, donating $17,000.