On October 10th Tracy was invited to speak at The Glasgow Rare Disease Showcase. Sharing her son’s patient journey, from diagnosis to starting treatment, she will outline the challenges of navigating and understanding the healthcare system, how bad things had to become before her son’s condition was taken seriously, and how taking back control led to the formation of a patient group – the Alfie Milne Lymphangiomatosis Trust – so that those in similar situations don’t have to feel the same level of isolation and frustration.

You can view the presentation here. https://youtu.be/-NrS0AKyCO0