‘In 2018 the theme was Research.  Research is key.  It brings hope to the millions of people living with rare diseases across the world and their families’.

We are celebrating Rare Disease Day. Working together with Rebecca Stewart from Rare Revolution Magazine we have managed to get some great articles, including our own, in the P & J highlighting the challenges that some families, living with rare diseases, face in the North-East of Scotland. Check out Monday’s article.

https://www.pressandjournal.co.uk/fp/news/aberdeen/1422275/rare-disease-day-alfies-parents-set-up-trust/