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Alfie’s Trust is excited to be featured in the ‘Rare Science’ section (page 58-61) of this issue. Along with our own article on the challenges of living with lymphangiomatosis and Gorham’s disease, we are very grateful to Dr Mike Dellinger, the Direct of Research, from the Lymphatic Malformations Institute, for kindly submitting a few words. Check out what he has to say on ‘Research’.