We would like you to meet Hollie Young – she has lymphangiomatosis. Ever since Hollie was diagnosed the family have supported Alfie’s Trust by getting involved and raising funds. Thank you to friends, family and colleagues for supporting Team Hollie in their fundraising activities over the last few months. From Bike rides to Ceilidhs this family have done an amazing job raising funds to help Hollie and other lymphangiomatosis and Gorham’s patients.

We want to say a special thank you to Jamie Keegans and Nicole Gaukrodger, Jamie’s brother and Michael O’Connell for taking part in the London to Paris Bike Ride and to Fiona Nattress and Laura Corbiere for organising a summer Ceilidh. You have done an amazing job in raising awareness of Hollie’s disease and raising a fantastic amount of £2,150 for Alfie’s Trust.

Read more about Hollie’s story