Help Cure Lymphangiomatosis...
Lymphangiomatosis is a extremely rare and incurable disease of the Lymphatic system causing benign tumours to spread throughout the body. Unfortunately these tumours can rarely be removed or shrunk using conventional methods like chemotherapy, which are used for the treatment of cancer. Learn More
Our mission is to raise awareness and fundraise to help find a cure to help children like 4yr old Alfie.
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We need your help?
We are working together with The Lymphangiomatosis & Gorham’s Disease Alliance and The Lymphangiomatosis & Gorhams Disease Alliance - Europe to help fund important research into this very rare disease. Currently there is no cure and there is very little funding as this disease affects only a handful of people in the UK. See how you can help.
Latest News & Events
April 7th, 2012
March 30th, 2012
February 26th, 2012
More schools and businesses participating in Rare Disease Day….
February 14th, 2012