Help Cure Lymphangiomatosis...

Lymphangiomatosis is a extremely rare and incurable disease of the Lymphatic system causing benign tumours to spread throughout the body. Alfie Unfortunately these tumours can rarely be removed or shrunk using conventional methods like chemotherapy, which are used for the treatment of cancer. We are working together with The Lymphangiomatosis & Gorham’s Disease Alliance and The Lymphangiomatosis & Gorhams Disease Alliance - Europe to help fund important research into this very rare disease. Currently there is no cure and there is very little funding as this disease affects only a handful of people in the UK.

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News & Events

March 3rd, 2015
The Centre for Research into Rare Disease in Children
February 27th, 2015
Rare Disease Day 2015…. Did you know?
January 20th, 2015
Alfie update….
Thank you to……
November 17th, 2014
Team Alfie joins Aberdeen and Deeside Kiltwalk
November 10th, 2014
The Scottish Accordion Music Group raises money for charity