Help Cure Lymphangiomatosis...
Lymphangiomatosis is a extremely rare and incurable disease of the Lymphatic system causing benign tumours to spread throughout the body. Unfortunately these tumours can rarely be removed or shrunk using conventional methods like chemotherapy, which are used for the treatment of cancer. We are working together with The Lymphangiomatosis & Gorham’s Disease Alliance and The Lymphangiomatosis & Gorhams Disease Alliance - Europe to help fund important research into this very rare disease. Currently there is no cure and there is very little funding as this disease affects only a handful of people in the UK.
Alfie Milne 23rd Oct 2014We really must work on Alfie's maths. No there are 6 not 2 , but they were fine ! http://t.co/vQu6tR7aXb
Alfie Milne 16th Oct 2014We had hoped to meet Megan & family when we went to Dallas but she was unable to attend , another down side to... http://t.co/ZFdiCIcppu
Alfie Milne 13th Oct 2014FDA Grants to Stimulate Rare Disease Research : Lymphangiomatosis & Gorham's Disease Alliance http://t.co/p6QSxlB7lN
Alfie Milne 11th Oct 2014His favourite was the Snake ? http://t.co/fgBL30f4jK